Wednesday, July 27, 2005

Some Party

Perhaps I've been painting too rosy a picture of Judah's condition lately, it's hard to tell. It's 12 midnight and Judah and I just watched The Family Guy together on TV. It's fun to share silly things together that make us both laugh. Judah fell asleep in his chair for a few minutes. He has been confined to a chair for the past few days because his breathing is so challenged. He is afraid to lie down in bed because it might start him on a coughing fit, so he spends all day in the chair by the window. He has promised his nurses all day that he will let them weigh him, but he has put it off until now because it is so difficult for him to move, even from the chair to the adjacent bed. The bed is also a scale.
He just went from chair to bed for a quick weigh-in and back to the chair. He is exhausted. He fell asleep instantly after getting back in the chair. He won't stop talking even though it is exhausting him. I keep telling him to be quiet and breathe. His breathing apparatus is on all the time now. He forgets to shut up and starts talking again. To anyone - the nurses, the RTs, me, himself. I remind him that it is the steroids and he shakes his head in agreement and shuts up again. His eyes roll back into his head and his lids close halfway revealing just the whites of his eyes.
He now likes to swish and spit with unsweetened Lipton Ice Tea. It keeps him moist of mouth and he seems to like the taste. Eating is still slow in coming but it is coming. Whatever slack Judah leaves in the eating department, Mom and I make up for. She spent the entire day here with Judah as his condition has been so erratic. He had a serious bout with shortness of breath today that caught everyone off guard, but he is more relaxed now. I'll sleep over with him tonight. The nurse came in and chided us for not being asleep already. Judah says it feels like we're having a slumber party.

1 Comments:

At 8:33 AM, Anonymous Anonymous said...

Benji,
I just wanted to say that you are amazing.
Love,
Your cousin Maggie in NY

 

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